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+--- Thread: Teen allegedly told to stop Googling symptoms dies of rare cancer (/showthread.php?tid=231)
Teen allegedly told to stop Googling symptoms dies of rare cancer - IceWizard - 06-21-2015
>Http://foxnews.com/health/2015/06/18/teen-allegedly-told-to-stop-googling-symptoms-dies-rare-cancer/
A hospital in the United Kingdom is
apologizing after a teenager who was
allegedly told to stop looking up her
symptoms online died of a rare cancer.
Nottingham University Hospitals NHS Trust
executives said they did not listen with
sufficient attention and must embrace the
Internet age, after Bronte Doyne, 19, died
March 23, 2013, news.com.au reported.
Bronte reportedly had pleaded with medical
staff to look at her online research for 16
months prior to her death.
Bronte was first hospitalized in September
2011 with what doctors believed as
appendicitis but was eventually confirmed to
be fibrolamellar hepatocellular carcinoma,
an extremely rare cancer, news.com.au reported.
Doctors believed she had beaten the cancer,
but Doyne suspected it had
returned when her cancer symptoms
returned.
Bronte was denied pain relief, referrals
were hugely delayed and efforts by her
family to gather information and understand
Bronte's prognosis were handled in an
evasive and aloof manner, Lorraine
Doyne, Bronte's mother, told news.com.au.
Her fears that her symptoms over the
preceding months before she died were
cancer-related were proved right.
The messages from Bronte are all her own
words, and I believe that's more powerful
for people to understand what she went through.
I want to see changes and action
now, she said.
The family stumbled upon the Fibrolamellar
Cancer Foundation website, which is
backed by the White House. The Doyne's
were allegedly told that surgery would cure
Bronte's cancer, but the website indicated
otherwise.
We asked after the surgery if they were
suspicious the cancer could come back, but
their response was, How will that help
Bronte? Lorraine told news.com.au.
We were told they will be seeing her over the
next 20 years it made her relieved, but
she still didn't feel quite right.
Bronte documented her symptoms, pain
and battles with medical staff via text
messages and Twitter, which the family
included in their formal complaint.
The Doynes say six weeks before her death a
doctor dismissed her and put her weight loss down
to genetics. It wasn't until10 days
before her death that she was admitted to a teen cancer
unit where the family's fears were confirmed.
We explored all potential treatments,
including participation in trials at other
centers when her cancer returned. Sadly
there were no further surgical, chemotherapy
or radiotherapy treatment options
for Bronte's very aggressive cancer, Dr. Stephen Fowlie,
NUH medical director toldnews.com.au.
We apologize that our communication with
Bronte and her family fell short. We did not
listen with sufficient attention. We should
have referred Bronte to the expert support
from the Teenage Cancer trust much
sooner, he said.
RE: Teen allegedly told to stop Googling symptoms dies of rare cancer - Charon - 06-21-2022
very sad. and, now, we can hardly get in to see doctors. Or don't want to.
RE: Teen allegedly told to stop Googling symptoms dies of rare cancer - connie8472 - 06-21-2022
That is so shocking yet on a small scale this is often what happens. I find it happening more and more with doctors just wanting to skip over or refer you on to a later date. People being dismissed by medical professionals as silly or just “what would you know I’m the doctor”. They don’t like it if you do know. Where I live the best bet is to go in and act really really ignorant and hang off every word they say. Lol
Otherwise they can get real nasty and dismissive.
Also recently I have been trying to make appointments with general doctors and they are online only via video linkup. So, covid is over somewhat but the medical staff have stayed with remote services. It’s crazy even doctors I know really well. They are taking phone and video appointments as it’s “easyer” . Where will it end? Other people in my circles have found the same thing. There normal doctor wanting to do phone calls instead of in person. It’s a worry
Very sad for this girls family. I hope they get some form of compensation or at least an acknowledgment that what they are saying is true.
This story is just one. I would think it’s happening a lot more and that this girl just kept good records and proof behind. The online thing has me very distressed at times. It’s hardly a check up. No value on the person, just a number. And then if you have too much intelligent input into your own care they are suspicious of you and treat you weird and dismiss.