10-17-2018, 06:24 PM
Hello community.
This is not about me, for once. A young family member of mine has been diagnosed with a very rare and debilitating autoimmune disease called Susac Syndrome. She's starting to lose her eyesight and hearing due to lack of blood flow. The one drug that has the best chance to help her is very expensive and her health insurance company has denied it.
The drug is Rituximab, brand name Rituxan. Her family is very distressed and trying to figure out a way to be able to afford this. Do any of you have any idea where I might be able to source this? I don't want to just start visiting random websites searching for it because that probably won't end well. But if you have any suggestions I'd appreciate it.
This is not about me, for once. A young family member of mine has been diagnosed with a very rare and debilitating autoimmune disease called Susac Syndrome. She's starting to lose her eyesight and hearing due to lack of blood flow. The one drug that has the best chance to help her is very expensive and her health insurance company has denied it.
The drug is Rituximab, brand name Rituxan. Her family is very distressed and trying to figure out a way to be able to afford this. Do any of you have any idea where I might be able to source this? I don't want to just start visiting random websites searching for it because that probably won't end well. But if you have any suggestions I'd appreciate it.