12-25-2019, 04:38 PM
Hi, Traygold
I'm not trying to start an argument. There were some things that sounded like slogans/platitudes to me, but I won't repeat them because I don't want to single out anyone who said them.
My post about assisted suicide was in reference to the claim that nothing is worth dying for. I do believe there are times when it is rational to choose death. I sometimes feel I am in that situation -- I hope not, but I may be.
About group therapy, I'm not sure I could get out of my house for that. I'm hoping to find something online.
I did ask one of my physicians (via email) for a reference to a Physical Therapist, about a few months back, but got no response. I don't know if PT would work for me, though. I would love to become physically stronger, but I nothing seems to work. I have tried all sorts of exercise programs for years. Some were ones I did on my own, some I did with PTs, some were ones I found online. Generally, I improve for a while (assuming I don't push myself too hard -- that can be really bad). But, after a month of two of improvement, I have a relapse and end up bedridden again. This has happened dozens of times, and it is absolutely heartbreaking. My allergist thinks it is immune-mediated, but doesn't know of a treatment.
For many years, I have looked for advice, support, etc for coping with my problems. All the non-medical personal I talk to, or medical personnel who haven't examined me, say I have to find a way to get better. But physicians and nurses who actually treat me say that isn't realistic and I'm not going to get better physically. But, the medical personnel are too busy to give support -- I'm supposed to get that elsewhere. So, I want to find a group that will help me figure out how to cope with the problems I have, rather than tell me I need to find some (non-existent) way of fixing the problems I have.
I would like to hear more about Physiatrists -- I don't really know what they do. Is there a website where I can read up on physiatry?
Also, I would really like a referral to a home health aid. I don't have a PCP right now, though. So, I recently sent my liver specialist a request for a referral. Maybe that will work.
Thanks!
Peony
I'm not trying to start an argument. There were some things that sounded like slogans/platitudes to me, but I won't repeat them because I don't want to single out anyone who said them.
My post about assisted suicide was in reference to the claim that nothing is worth dying for. I do believe there are times when it is rational to choose death. I sometimes feel I am in that situation -- I hope not, but I may be.
About group therapy, I'm not sure I could get out of my house for that. I'm hoping to find something online.
I did ask one of my physicians (via email) for a reference to a Physical Therapist, about a few months back, but got no response. I don't know if PT would work for me, though. I would love to become physically stronger, but I nothing seems to work. I have tried all sorts of exercise programs for years. Some were ones I did on my own, some I did with PTs, some were ones I found online. Generally, I improve for a while (assuming I don't push myself too hard -- that can be really bad). But, after a month of two of improvement, I have a relapse and end up bedridden again. This has happened dozens of times, and it is absolutely heartbreaking. My allergist thinks it is immune-mediated, but doesn't know of a treatment.
For many years, I have looked for advice, support, etc for coping with my problems. All the non-medical personal I talk to, or medical personnel who haven't examined me, say I have to find a way to get better. But physicians and nurses who actually treat me say that isn't realistic and I'm not going to get better physically. But, the medical personnel are too busy to give support -- I'm supposed to get that elsewhere. So, I want to find a group that will help me figure out how to cope with the problems I have, rather than tell me I need to find some (non-existent) way of fixing the problems I have.
I would like to hear more about Physiatrists -- I don't really know what they do. Is there a website where I can read up on physiatry?
Also, I would really like a referral to a home health aid. I don't have a PCP right now, though. So, I recently sent my liver specialist a request for a referral. Maybe that will work.
Thanks!
Peony