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Fentanyl Hits the Streets Disguised as Xanax and Norco
#31
(03-23-2019, 12:30 AM)Charon Wrote: I am very saddened to hear that you have become so ill.

But, I know I don't experience your torment daily, I do hear some very small improvements in your health.  starting to be able to eat is wonderful.  And you are blessed to have your spouse be such a kind and knowledgeable caregiver.

I keep all members in prayer.  Oh, precious, I am so sorry.

There sounds to also be a chance an autoimmune took hold of you then.  And, if so, you can very slowly heal I pray.

We don't often hear of near deaths. I gotta look up signs of F tainted meds.

cuz, right now, i am not sure vendor is gone.  He or she may be moved to an area u cannot see.  And if u have proof that the benzo u used from a vendor that was here, or still could be, was tainted, then people need to be radically warned to always get a kit.  TEST IT ALL.  PK, BENZO, ANY OF IT.

You will heal somewhat and I praY you will start to really recover.  Others will pray for you also.
Thank you Charon, yes I too think an autoimmune took hold of me . Its been very hard to get any dr not to think I was a seeker of some sort to be able to see me . Once they hear how I got like this that is all they can see/hear . I am having to move away to be able to get medical care . If it were not for my husband I would have none at all . One told me the only thing wrong with me was not reading the bible. Yes an MD told me this . Another used the old anxiety diagnoses , and on and on . Etc etc ..  I am going to a alternative med MD on the 3rd . I do have some to test but I am so freaking fearful that I am afraid to touch it . I told my husband last night that I think I am traumatized by all of this - just the whole experience . I am usually pretty tough but this has cut me to the bone . 
 This vendor vanished , even from his own site about 8 months back . Thank you all for praying for me , I need it . I hope every day to heal a little more but it is as scary as can be . Yes to everyone , please be safe .
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#32
I am still so pained for you. Please update us as u can.

Keep sounding stronger precious. Autoimmunes are mess of similar symptoms.

A few of us will keep u covered in prayer.
Angel  It is Well with My Soul  Angel
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#33
(03-23-2019, 03:47 PM)Satin Scene Wrote:
(03-23-2019, 12:30 AM)Charon Wrote: I am very saddened to hear that you have become so ill.

But, I know I don't experience your torment daily, I do hear some very small improvements in your health.  starting to be able to eat is wonderful.  And you are blessed to have your spouse be such a kind and knowledgeable caregiver.

I keep all members in prayer.  Oh, precious, I am so sorry.

There sounds to also be a chance an autoimmune took hold of you then.  And, if so, you can very slowly heal I pray.

We don't often hear of near deaths. I gotta look up signs of F tainted meds.

cuz, right now, i am not sure vendor is gone.  He or she may be moved to an area u cannot see.  And if u have proof that the benzo u used from a vendor that was here, or still could be, was tainted, then people need to be radically warned to always get a kit.  TEST IT ALL.  PK, BENZO, ANY OF IT.

You will heal somewhat and I praY you will start to really recover.  Others will pray for you also.
Thank you Charon, yes I too think an autoimmune took hold of me . Its been very hard to get any dr not to think I was a seeker of some sort to be able to see me . Once they hear how I got like this that is all they can see/hear . I am having to move away to be able to get medical care . If it were not for my husband I would have none at all . One told me the only thing wrong with me was not reading the bible. Yes an MD told me this . Another used the old anxiety diagnoses , and on and on . Etc etc ..  I am going to a alternative med MD on the 3rd . I do have some to test but I am so freaking fearful that I am afraid to touch it . I told my husband last night that I think I am traumatized by all of this - just the whole experience . I am usually pretty tough but this has cut me to the bone . 
 This vendor vanished , even from his own site about 8 months back . Thank you all for praying for me , I need it . I hope every day to heal a little more but it is as scary as can be . Yes to everyone , please be safe .

Dear Satin Scene,

I really feel for you. This is so horrible.

I started reading this thread out of interest for the "Fentanyl" crisis. I find that these misadventures  are making doctors afraid to prescribe any kind of opiates. This is also putting patients at risk.

I have witnessed my mother going through an unbearable flare up of a "horse's tail" inflammation. She was prescribed both Fentanyl and Oxycodone, for months! I found her short term memory was terribly affected and I asked the doctor of the medical centre if she could not reduce the dosage. She told me she tried, but the pain came back every time with a vengeance. I agreed with her that controlling the pain was more important than holding a coherent conversation. The inflammation eventually subsided after over six months.

I'm now wondering if, with all the hullabaloo around these strong plain killers these days, my mother would have been condemned to literally die of acute pain, in a very short time.

You said you are consulting with an alternative MD next week. Osteopath? When properly trained, they can help tremendously. I hope, pray, wish... that that visit will open new horizons of blue and give you tools to better your quality of life and well being. Heart

Godspeed,

M.
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#34
(03-22-2019, 08:17 PM)Satin Scene Wrote: This recently came to my attn also as I am struggling hard after 4 months off a certain B mag from a  vendor no longer present but one we all know .  I went to this vendor for a very tough taper for some years. I am now 100% disabled, will be in a wheelchair for life , my autonomous nervous system is broken so if I stand my heart can no longer pump blood from the lower part of my body to my head so my heart will now beat up to 168 bpm to try , It goes back to nearly normal now sitting and laying and when I walk it will range from 45-113 but I cannot walk all over all of the time .. At first I could not even sit up . My heart rate stayed over 113 for 2 months straight.   I can now swallow again also , and I have started to eat food  again as it completely stopped my digestion but it is slow going, my bladder failed and I have to be straight cathed by my nurse husband as I cannot eliminate at all , BP has been very low at 80/50 but is trying to stabilize at 98-102/70 now ..usually . I lost 40 lbs without trying and my hair which was down past my waist and thick came out by the handful's .  The suffering is horrendous . I did the taper correctly VERY slow and still I am destroyed . The taper ended in Nov and we are finding out about this now and I am certainly wondering . My GP says this is one of the worst cases of B poisoning he has ever seen in his career .So I don't know. I'd be hard pressed to take a baby aspirin after this . I wondered if this had been talked about here and I see that it has .  Sorry for the TMI but yeah , I'd say get a kit and make sure , I wish I had .

Hi Satin, so very sorry to hear about your condition. I can somewhat understand since I've been disabled for over 10 years, and autonomic dysfunction is one of my issues.

Do you mind me asking about your situation? It sounds like you have post-orthostatic tachycardia syndrome. Did your symptoms begin during the taper or only after you were completely off? When you say "B mag," are you referring to benzos or something else? Just wondering because I take benzos for my health condition, and someday I hope to be able to get off them, so I try to gather as much info as possible.

Feel free to PM me if you'd rather not discuss it publicly.
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#35
Dear Satin,
I will keep you in my prayers. I am so sorry that you are going through this. I have test strips but ideally you should test every mag each time you read. I think that is impossible for 99% of us. What a horrible situation we are in. Stay strong.
N.
Faith and fear can not coexist  Angel
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#36
(04-07-2019, 08:36 AM)invisiblejungle Wrote:
(03-22-2019, 08:17 PM)Satin Scene Wrote: This recently came to my attn also as I am struggling hard after 4 months off a certain B mag from a  vendor no longer present but one we all know .  I went to this vendor for a very tough taper for some years. I am now 100% disabled, will be in a wheelchair for life , my autonomous nervous system is broken so if I stand my heart can no longer pump blood from the lower part of my body to my head so my heart will now beat up to 168 bpm to try , It goes back to nearly normal now sitting and laying and when I walk it will range from 45-113 but I cannot walk all over all of the time .. At first I could not even sit up . My heart rate stayed over 113 for 2 months straight.   I can now swallow again also , and I have started to eat food  again as it completely stopped my digestion but it is slow going, my bladder failed and I have to be straight cathed by my nurse husband as I cannot eliminate at all , BP has been very low at 80/50 but is trying to stabilize at 98-102/70 now ..usually . I lost 40 lbs without trying and my hair which was down past my waist and thick came out by the handful's .  The suffering is horrendous . I did the taper correctly VERY slow and still I am destroyed . The taper ended in Nov and we are finding out about this now and I am certainly wondering . My GP says this is one of the worst cases of B poisoning he has ever seen in his career .So I don't know. I'd be hard pressed to take a baby aspirin after this . I wondered if this had been talked about here and I see that it has .  Sorry for the TMI but yeah , I'd say get a kit and make sure , I wish I had .

Hi Satin, so very sorry to hear about your condition. I can somewhat understand since I've been disabled for over 10 years, and autonomic dysfunction is one of my issues.

Do you mind me asking about your situation? It sounds like you have post-orthostatic tachycardia syndrome. Did your symptoms begin during the taper or only after you were completely off? When you say "B mag," are you referring to benzos or something else? Just wondering because I take benzos for my health condition, and someday I hope to be able to get off them, so I try to gather as much info as possible.

Feel free to PM me if you'd rather not discuss it publicly.

Oh it is ok , I just have been so sick that I am off and on , I came here today to check so that I would not seem rude . 
My wheelchair came this week , pearl white and custom , it is a sports wheelchair so it is very sleek and not scary looking and I decorate it with colored push rims and spoke skins .. and We are finally leaving this small town where my husband had a temp nurses job and I got so sick we couldn't go anywhere . ZERO medical care here , one GP told me I was going to have to go back to civilization to be able to find someone knowledgeable in what is going on with me and I pretty much knew this but am SO GLAD to be going back home .

Thank you invisible , I am still just taking it day but day . Yes I do have POTS. It had been fair during the day at 80-101 standing nd I thought I was better until yesterday when standing it was just insane 120-148 again . I am so tired of this .  Almost 5 months now . 80-90 sitting up . Today it is a but lower . My normal was 65 -67. I know the range is 60-100 but that is not my range . My stomach issues are still very difficult and I was having shortness of breath yesterday with the POTS also . In answer to your question yes it was the beast of the benzos klonopin . If you look around the recovery forums you will see that most of us with this issue have been on that benzo. A GP mis prescribed it when my gall bladder burst years ago ,many years . and the phenergen stopped working . Such a HUGE dose that I could not find any MD to help me with a taper  so I had to do it myself . 5 years long and this happened the day after my last dose . It just trashed my autonomous nervous system. This seems t happen to those of us that have been on too high an rx for way too long . I did not have a clue about this F issue . 
 @Noel I should have started testing last year  when a co worker of my husbands ran out and had to borrow one of mine to keep from getting sick and he became very ill the next day . I was just so sick in tolerance that I could not have been able to tell the difference .
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#37
May u be blessed with healing and wisdom to doctors to finally treat you properly.

Many fall between the cracks in this world and it has been really hard on you.

You are getting out. So glad you will have increased your chances of appropriate medical care.

And that wheel chair, a muscle car, sounds bitchin.

May u find all that u need now.
Angel  It is Well with My Soul  Angel
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#38
One word for this stuff Scary.
stay strong ? and fight till the end.
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#39
Scarey as hell,so thats 2 words.I know a couple of friends who were mis diagnosed and one is barley able to get about now,his bones are fusing together all over his body,the meds he gets have horrid side effects that make him even more ill.
another friend was told he had maybe burst a blood vessel under his armpit due to heavy lifting at work,it was lymphatic cancer.He manged to get treated quickly and is now better thankfully though he had a scare recently and had to go for a test/scan or similar,hope he is ok,not seen him for a wee while.

Our health care system is falling apart,people suffering needlessly,in 2019 people are left at home to suffer in pain,when are those with power going to start acting humanely?
Mind the Gap Please. Exclamation
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#40
Yeah things are getting really bad with the amount of people who aren't getting the proper health care they need and medication and they wonder why people like us are on places like this if they were doing there jobs right we wouldn't have to do the things most of us have to do , it's a bad state of affairs.
stay strong ? and fight till the end.
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